Friday, March 11, 2011

Relief

 I have no memory.  Really.  I forget everything..dates, plans, where I put my keys, things I try to memorize, names...everything.  I've only told one person that before this week.  It seems to be getting worse as I get older and just thinking about my poor memory can reduce me to tears.

Let me go back to the beginning. I have a mother who suffered a TBI (Traumatic Brain Injury) when I was 14.  She has short term memory loss and some long term issues.  Highly emotional situations are almost guaranteed to disappear from her memory.  Her TBI made her children her caretakers and took our childhoods long before we reached adulthood.  My greatest fear is of losing my own memory.  I've seen the damage it does.

I fear this so much that I don't mention it to anyone, not my husband, doctor or best friends.  I would just tell myself that if I became more organized, or wrote things down, or tried harder it would get better.  Secretly I wondered if the concussion I got in that same accident had been worse than anyone suspected.  I feared becoming broken.

This week, I worked up the courage to mention it to a close friend.  "Do you think I have a bad memory?" I asked her.

"You have the worst memory of anyone I know," was the crushing reply.

I started quizzing other friends who all said similar things.  "You forget everything." "I know that if we have plans that I need to call you the day before and the day of to remind you.  If I don't. then you won't show up, or will double book."  I was even told, "We all kind of warn the new moms in our group.  Rebecca is the nicest person you will ever meet.  She's the best friend that you will ever have, but her memory is crap.  If she forgets something you have planned or repeats herself a dozen times, don't take it personally...it's just part of who she is.  It's worth the effort to be her friend"

I hung up the phone after talking to the 5th one, and I cried.  I was my mother.  I had become a burden on the people I know and love.  They have to cover for me and explain me to new people.  I have great friends, but ....how horrifying.

I sucked it up and went to the doctor.  It's a new doctor I've never seen before now.  I picked her out of our provider handbook and then prayed.  I prayed that she would be nice, and that she would have the wisdom to figure it out.

I chatted with the doctor for a few minutes in that "getting to know you" part of the appointment. She jotted down a few notes and then said, "So, what can I do for you today?"

I totally chickened out and said, "I've had really bad heartburn since the baby was born.  It doesn't go away even with OTC medication."  In my defense, I really do have heartburn and it really doesn't go away. 

She asked me a few questions and then looked at me expectantly.  After a long awkward pause she said, "And how are you treating your ADHD?"  I was floored.

"I have ADHD?" I asked. 

She smiled at me and walked away.  She returned with a 4 page questionnaire and waited while I filled it out.  She quickly scored it and then said definitively, "You have ADHD. I didn't need the questionnaire, but it confirms what I can plainly see."  She went on to tell me that on a scale of 0-80 with 0 being 'your brain is slug-like' and 80 being 'your brain is on hyper-drive' I scored a 72. 

Far from surprised, the doctor said that I has skipped around through 6 unrelated subjects in less than 10 minutes all while constantly fidgeting, and she said "Nobody talks as fast as you do unless they are from New England, on speed, or have ADHD." She told me a lot about my brains inner-workings and then said "I'm surprised you don't have pretty substantial memory issues with a score like this. I don't mean you forget the big stuff, but I would think you'd forget all the little stuff all the time."   Is it wrong to hug your doctor?

I'm not slowly sliding into dementia.  My brain just moves too quickly and too erratically to create connected memories.  We just need to slow it down a bit, so we have.

I started a prescription 3 days ago and it should take 3 weeks to reach full effect, but oh my..the difference.  She told me that if this was the right medication it would be obvious within a few hours.  It was.  The background noise in my brain went away.  It's like getting rid of the static on a radio station.  The noise I never noticed is gone. 

I'm not damaged.  I'm not a stupid person.  It's not that I'm  flake (although I may actually be a flake...I'll let you know in a few weeks.) I just have a brain that moves at warp speed, and that can be treated.



That evening, I waited in the living room for the Computer guy to get home and rehearsed how I would tell him.  As I started speaking, he interrupted me, "What happened today?  You're speaking at a normal person speed."   With relief, I told him of my fears and the answer I had gotten....for once I told him something and went straight from A to B without my story meandering around and hitting all the other letters on the way.  I could think in a straight line without distraction.  If the next three weeks will make it better than this?  I can't wait.


**Did you make it all the way though?  Thanks for sticking with me!**

26 comments:

Foxfier, formerly Sailorette said...

*hugs*

Thank goodness!

As much as I growl because stuff is over-diagnosed, it's wonderful to hear someone actually being HELPED!

Sew said...

That is great!! I thought u talked fast when we talked! But I also thought this girl has some serious energy and I figured that's how you burned it!! ;). So glad the meds worked!!!!!

K said...

\0/

K said...

I talk fast but I was born in New England and raised in NJ. That's my reason :D

Joe @ Defend Us In Battle said...

See as a guy I have a billion things I want to say, all of which are snarky ;)

So instead, just ditto something nice someone said for me :)

Does this mean more posting btw? I sure hope so!!

aka the Mom said...

Joe! Say the snarky things. I love them! If not I'll spend the next hour or so trying to guess what they are.

Anonymous said...

That is FANTASTIC. It's about time you got some good help from the medical community :) I saw a show on PBS this week called 'ADD and loving it' (I think it applies to ADHD also) and they did mention memory problems. -Loretta

Lauren @ Magnify the Lord with Me said...

Oh my gosh! Healing!!! I am SO thankful you faced your fear- and as dark as it seemed while you spoke to your friends- the Lord gave you the hand you needed through your doctor's question! Oh I'm SO thankful for your relief!!!

Maurisa said...

Wow! Betcha love your new doctor! Hooray for answers!

Nod said...

Cool. Congrats.

They say that memory is the 2nd thing to go ... I don't remember what the 1st one is.

lisa w. said...

Wow, Rebecca! That is awesome. What a terrific blessing and relief to find this out. I'm very happy for you! :)

angie ulseth said...

I'm so glad to hear an adult perspective on how meds vs no meds feels. When students try to explain it to me, it's very vague and with terms like "I feel weird when I don't take my pill."

It was nice to meet you last night, and to put a real person to the name. :)

Leila @ Little Catholic Bubble said...

Good for you!! I have a son who was just diagnosed with ADHD (after many years of us resisting taking him in to the doctor), and his meds have made ALL the difference! I can imagine the joy and relief you must feel! Danya calls it "better living through chemistry"!

peaceandquiet said...

I love you. You just need to know that. Memory, or no. You're just awesome!
And thank you for talking about taking medication for this. It IS nice to hear an adult's take on it.

Maggie said...

*hugs*

I always feel like diagnoses are a double edged sword. They help us understand things so much better, make us not feel so alone/different. It also makes us feel broken.

I have been diagnosed with anxiety and depression. Understanding my anxiety helps me deal with it, but it sure makes me feel broken too.

I am so hopeful that the medication will help your mind slow down. Good doctors are hard to come by, I am glad that you found one.

Praying for you and your family!

Michele said...

I am so glad you are finding help!! It takes a lot to be able to get to that point and you are doing it!!!

Jackie Parkes MJ said...

Great post..

the misfit said...

That's fascinating that you had such obvious symptoms and were never aware of them. I too talk exceedingly fast...but I am from the vicinity of New England, so that's supposed to be why. (I also forget about 60-70% of everything within about 24 hours, but only since I moved to this infernal city where everything is distracting, and not, apparently, to the degree that anyone but my boss has noticed my memory is bad.) So, anyway, lots of perfectly nice people talk fast and forget things :). But I'm glad you're feeling so much better!

Rachel said...

YAY!!!!!

This will undoubtedly echo across the rest of your life. The homeschooling, the family interactions--oh, praise God, your move (I can only imagine how much easier that will be!!).

Sniffle. I am so glad for you! ((HUGS))

Living for the Lord in 2011 said...

I am so happy for you!

Praying that the healing hand of the Lord will touch you and you continue to improve!

Rachel said...

Oh, and I didn't think you talked fast.

Should I be concerned for myself, now? LOL

Packrat said...

Wow! For someone who has ADHD, you really, really write well and stick to a subject. Some of the students with ADHD that I worked with couldn't complete a written sentence. So glad the medicine is working.

Scottiev said...

@Maggie- anxiety and depression are two symptoms of ADD. I only say this because I have it and had issues with both in the past. it sounds crazy but once the ADD was treated, the anxiety and depression have lessened to nearly nonexistent most days. My friends even talk openly about how happy I am all the time.

Megan said...

Wow! Praise God for good doctors! So glad the medication is helping!

Meika said...

Amazing!!! And I'm kind of thinking I should be tested...

Roz said...

I wandered here (I forget how). That should tell you something.

I was diagnosed as an adult too. Medication doesn't fix everything -- I still have to write stuff down -- but at least I remember to write stuff down. :-)

I'm so happy for you and the relief you feel. Welcome to the club of "Ferrari brain in Corolla body"!